The Kyle John Rymiszewski Foundation was founded in loving memory of our son, Kyle, who lost his life at age 15 when his heart of gold stopped beating. At birth, Kyle was diagnosed with hypertrophic cardiomyopathy, a chronic heart disease where the myocardium (heart muscle) is thickened. As a result, the heart cannot relax or contract normally. Eventually, it can lose its ability to pump blood effectively.

The foundation is dedicated to making a difference for those afflicted with this terrible disease and are currently focusing in 2 areas:

  • increasing awareness
  • funding research aimed at improving treatment outcomes

In 2011, the foundation undertook a first step toward increasing awareness. Through an endowment to WDET 101.9FM, Wayne State University’s NPR station, we are sponsoring local news radio, journalism and health reporting. Become a WDET listener and keep your ears open to hear the Kyle John Rymiszewski Foundation mentioned on the air.

Recently, the foundation committed to support research!  In March of this year, Clinical Professor Paul Barach, M.D., M.P.H., joined the WSU School of Medicine’s Department of Pediatrics as the inaugural Children’s Cardiomyopathy and Kyle John Rymiszewski Foundations Research Scholar. A Harvard-trained cardiac anesthesiologist and intensive care expert with formal training as a health services researcher, Dr. Barach is considered one of the world’s leaders in quality and safety outcomes for children with heart diseases. In addition, he was formerly an associate professor at University of Miami and medical director of quality and safety at Jackson Memorial Hospital in Miami. He has edited several medical textbooks and published more than 400 medical articles. The position reflects the foundation’s recognition of the need to foster the next generation of researchers in the field.  We are fortunate to have hired someone with Dr. Barach’s credentials in the inaugural year of this research scholar position.  We are committed to funding it in perpetuity.

We will continue to support and collaborate with the Children’s Cardiomyopathy Foundation (CCF), a national non-profit organization dedicated to finding causes and cures for pediatric cardiomyopathy through research, education, awareness and advocacy.  In 2014, the foundation was a major sponsor of CCF’s 3rd Annual International Symposium on Pediatric Cardiomyopathy.  We look forward to supporting their 4th annual in 2017.

Please consider supporting the Kyle John Foundation with a donation so that we can continue to make a difference for kids afflicted with hypertrophic cardiomyopathy.

 

In sincere appreciation for your interest,

Ken Rymiszewski & Aimée Cowher

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Mission

The Kyle John Rymiszewski Foundation is dedicated to making a difference in the lives of children afflicted by hypertrophic cardiomyopathy. By collaborating with other well-established organizations who have a common interest, the foundation is focused on increasing awareness of hypertrophic cardiomyopathy and funding research that improves treatment outcomes.

Make a donation to support the mission of the Kyle John Rymiszewski Foundation.

Events

August 19, 2017
15th Annual Celebration of Life

CELEBRATION OF LIFE 2017
Saturday, August 19th at 3:00 PM
Rio Vista Farm

History of The Celebration of Life by Gary Cone

The party began in summer 2003 to celebrate the graduation of Aimée’s sister, Shannon, from Oakland University. Discussing various options for the party, Gary and Aimée decided to open up their recently acquired property to family, friends, and neighbors. Aimée (as usual) did all the heavy lifting and Gary insisted on live Rock ‘n’ Roll with a touch of blues. The party was a success with about 80 people in attendance. Aimée was pregnant with Abi who was born in November that year.

August 20, 2004 – for the previous year, Gary and Aimée had been involved in a fairly tedious effort to enhance the math curriculum of the local school district and we decided to make the celebration a bit more manageable and invited a group of 20 or so parents and kids. Abi, 9 months, was introduced to her first big celebration. Kyle suffered cardiac arrest just before sundown that evening and spent the next seven weeks in Children’s Hospital of Michigan at the Detroit Medical Center.

August 20, 2005 – Kyle’s recovery has defied all the expectations of doctors and on-lookers, with the exception of Aimée (those who know her well understand.) Abi not quite 2, is running and talking; Aimée is pregnant with Ali, due to be born in September. What better reason to have a party? The party gets a name, Celebration of Life, and a permanent spot on the August social calendar. A little over 100 are in attendance. Ali is born 3 days later on August 23rd, over 3 weeks early, on her brother, Austen’s, 23rd birthday. Interesting how the numbers worked out!

August 26, 2006 – Kyle continues to make remarkable progress; Ali attends her first shindig but shows signs that she may be a natural entertainer; Abi is dancing and makes a beautiful model for her cousin Sherry, photographer extraordinaire.

August 25, 2007 – Kyle’s progress continues and he is starting to act like a teenager; big brother Austen has moved to Michigan to finish college at UofM. Ali is walking and talking and is a wild woman in general and gives great hugs. Abi continues to mature into a beautiful, kind, and helpful young lady. Despite the weather not cooperating, including a power outage, the party went on and we celebrated life!

August 23rd, 2008 – While the party was named in honor of Kyle, we celebrated life in many ways with a record attendance, including many newcomers and out-of-towners, on Austen’s and Ali’s birthday and… it was Shannon’s turn to be pregnant, expecting October 11!

August 22, 2009 – So much to celebrate in the midst of difficult times. We are truly blessed in so many ways… come Celebrate Life! This was the last party Kyle was with us.

August 21, 2010 The party must go on because we should celebrate life everyday but sometimes the everyday demands cause us to forget. The party must go on to celebrate a life that ended much too soon. This year and every year to come, the Celebrate Life party will go on – in honor of Kyle’s life and his kind heart that stopped beating all too soon.

August 20, 2011 – and the celebration continued. Thru generous donations, a raffle of Kid Rock jerseys and a silent auction, over $10,000 was raised for Kyle’s foundation!

August 18, 2012 – we celebrated the year of Kyle’s high school graduation with record attendance, great dance music by the new house band, Chateau, and fireworks and Chinese lanterns to end a beautiful evening.

August 17, 2013 – the celebration gets better every year! How is that possible? Over $15,000 was raised for Kyle’s foundation. Thank you to all who attended and donated!

August 23, 2014 – the celebration continues…

History of Rio Vista Farm

Rio Vista Farm is the last 11 acres of a dairy farm founded in 1890 by the Kerner family. Fate allowed Aimée to purchase the farm from the founder’s nephew in 2001. The house was built in 1890, and expanded in 1918 and 1968. The original barn, built in 1890, still stands. The renovated tool-shed, built in the early 1900’s was global headquarters for our growing business, GPS, until 2011. We continue to evolve what we consider to be one of the more beautiful places we have ever seen, our oasis in the middle of suburbia. It will be held in our family, God-willing, and become a rentable venue in 2015 with proceeds donated to the Kyle John Rymiszewksi Foundation. Check kylejohnfoundation.org for updates on our progress.

History of Celebrate Life and Rio Vista Farm by Gary Cone

 

PAST EVENTS
December 9-10, 2016
Kyle’s Challenge on WDET 101.9FM

The Kyle John Foundation is ready for you to get involved in a WDET community impact campaign. Kyle’s Challenge is a way for your year-end gift to have tremendous impact by supporting WDET and in turn fueling a huge giveback to the youth of our region! Learn more and meet Kyle’s Challenge with your gift now at wdet.org

Learn More »

 

July 29, 2017
Kyle John Rymiszewski 8th Annual Golf Outing

Join us for our 8th Golf Outing on July 29, 2017 for a day of golf, fellowship, fun, silent auction, awards, dinner and much more.

Individual Golfers: $120; Foursome: $480
*Includes 18 holes of golf with cart, lunch at the turn, 4 drink tickets, dinner w/ open bar.

If you are unable to golf but would like to attend dinner, the cost is $50.

Make a donation to support the mission of the Kyle John Rymiszewski Foundation.

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